FIGHTING TO THE END

WHEN RJ WAS BORN HE WAS 7LB   12 INS   22FEET LONG .  VERY HEATH BOY.  HIS WEIGHT WAS GOOD FOR AWHILE.  I DON'T REMEMBER WHEN HIS WEIGHT. I DO REMEMBER HE WAS TRYING TO ROLL OVER . HE WAS ONLY ABLE TO DO THAT ABOUT 3 TO 4 TIMES THEN HIS MUSSELS WERE SHRINKING  WHILE HE WAS GROWING. THERE WAS NOTHING I COULD DO TO STOP THE DISEASE .
THE DOCTOR ADVISED ENSURE PLUS FOR HIM TO EAT  RJ HAD TO HAVE A (N.G.) TUBE AT THE AGE 2 AND HALF. YEARS OLD .  RJ WAS UPSET IN AWAY  ( THROWING  A FIT ) ONLY TWO TIMES IN HIS LIFE.  RJ WOULD GIVE YOU THE EYE BROW TALK, AND THE LOWER LIP WHEN HE WAS SAD.  WHEN RJ WAS IN THE HOSPITAL TO GET SHOTS .  HE WOULD NOT MIND .  HE HAD SO MANY OF THEM. THE BLOOD DRAWN WAS PAINFUL FOR HIM.  HE HAD A LOT OF SEIZURES   THE WORSE ONE THAT I SAW,HE WAS IN ONE FOR 12HRS.  HE SLEEP FOR TWO DAYS AND ONE NIGHT.  HE WOULD COME OUT OF ONE FOR ONE DEEP BREATH.AND  WOULD GO BACK IN TO ANOTHER ONE LUCKY THAT HE WAS ON A FEEDING TUBE.. 

THE YEAR BEFORE RJ WENT IT WAS NOV. 02.  HE GOT VERY SICK AND HOSPITALISED AND WHEN THE DOCTOR SAID THAT IT COULD BE ANY MOMENT THAT HE COULD GO. I HAD A PANTACK ATTACK  AND THE DR. PUT ME ON SOME OXYGEN AND GAVE ME SOMETHING TO TAKE.  RJ THEN BECAME STABLE , NOT GOOD BUT  NOT GETTING WORSE.  THE DOCTOR CAME TO ME AND SAID THAT HE WOULD LIKE TO TRY ONE MORE THING.  AND SLOWLY RJ CAME BACK.  RJ GAVE ONE WHOLE YR. TO BE WITH ME AND HE PASS AWAY NOV. 23. 2003